About Luke and Liam

Luke and Liam were born on May 12th, 2015 at a mere 3 pounds 4 ounces and 3 pounds 1 ounce.

They were born fighters.

They spent 4 weeks in the NICU growing and thriving.  Just 1 day before coming home from the NICU, their parents got a devastating diagnosis. Both boys had Lissencephaly.  Lissencephaly is a rare brain malformation, which is characterized by the absence of normal convolutions (folds) in the cerebral cortex.  Since the boys were identical twins, and the disorder was genetic, both boys were affected.

In that moment, everything changed.  Their parents were determined to make the most of the time they had with their twins and enjoy every second with them.  They spent their lives being loved endlessly, exploring, and being held every chance they got.  They thrived and proved many doctors wrong.  Their smiles lit up the room, their laughs were contagious, and their love for their parents and each other was unmatched.  Their parents chose not to tell many people about their disorder, as they wanted the world to see them as the perfect children they were.

The day after Christmas 2015, the lights dimmed as the boys started showing symptoms of the disorder (which in the 7 months of their lives had been held at bay).  Liam passed away in his parents arms, with his brother by his side, on January 9th, 2016.  Just 3 short weeks later, on February 5th, Luke joined his brother in Heaven.

Honor Luke & Liam May 12

 


 

Update: In March, 2017 Luke and Liam’s family welcomed a baby girl named Zosia.